Episode 127

full
Published on:

10th Jul 2024

Neuropathy: 10 important ways to help keep parent's safe and their dignity in tact

How can you help keep mom and dad safe when they can't feel their fingers or toes?

Does your aging parent struggle with tingling, numbness, or pain in their hands and feet? This episode of Eldercare Success dives deep into the world of neuropathy, a common condition among seniors that can significantly impact their independence and quality of life. Host Nancy May shares her personal experience caring for her father with neuropathy, offering compassionate insights and practical advice for navigating the challenges caregivers face. Discover how neuropathy affects daily activities like eating, dressing, and even walking, and learn ten actionable strategies to empower your loved one to maintain their dignity and autonomy. From adaptive kitchen tools and mobility aids to home safety modifications and understanding the importance of proper footwear, this episode equips you with the knowledge and resources to provide the best possible care for your aging parent.

Key Concerns for Family Caregivers:

  • Safety Risks: Neuropathy increases the risk of falls and accidents due to numbness in extremities.
  • Loss of Independence: Simple tasks like buttoning clothes or using utensils can become difficult, impacting dignity and autonomy.
  • Communication Challenges: Understanding the impact of neuropathy on your parent's ability to communicate their needs.
  • Finding the Right Adaptive Tools: Navigating the world of adaptive equipment and identifying products that meet your parent's specific needs.
  • Emotional Well-being: Caring for a parent with neuropathy can be emotionally challenging; prioritizing self-care and seeking support is crucial.

5 Key Takeaways: Listen in because there are actually 10 in this episode.

  1. Neuropathy is More Than Just Numbness: It can cause pain and tingling and affect balance, making everyday activities difficult and increasing fall risks.
  2. Adaptive Tools are Essential: Simple modifications like rocker knives, grab bars, and non-slip mats can make a huge difference in your parent's independence.
  3. Proper Footwear is Crucial: Well-fitting, supportive shoes are essential to prevent falls and ensure comfort.
  4. Where Occupational Therapy Can Help: OT can provide personalized strategies and exercises to improve dexterity, strength, and mobility.
  5. Patience and Dignity are Key: Approach caregiving with empathy, understanding, and a focus on preserving your parent's dignity.

Helpful Links:

How you can help:

If you found this episode helpful, please share it with a friend, family member, or even someone you see at your local coffee shop who might be dealing with similar caregiving challenges. Don't forget to subscribe to "Doing it Best with Eldercare Success" on your favorite podcast platform and leave us a five-star review. Your support helps us continue to bring valuable content to caregivers everywhere. Visit EldercareSuccess.Live to leave Nancy a voicemail with your questions or comments for a chance to be featured on the show.

🎧🎤HostNancy May has gone from the Boardroom to the Emergency Room to care for her aging parents and educate business owners, corporate employees, and leaders with more strength and confidence in doing well and doing good.  Nancy is the five-star author of How to Survive 911 Medical Emergencies, Step-by-Step Before, During, After! and an award-winning expert in managing the complexities of caring for an aging parent or family member, even from over 1200 miles away, or more for a Free File-of-Life to www.howtosurvive911.com

Nancy is also the  Co-Founder of CareManity LLC and the private FaceBook group Eldercare Success.

Disclaimer: The views, perspectives, and opinions expressed in this show are those of the show guests and not directly those of the companies they serve or that of the host or the producer CareManity, LLC. The information discussed should not be considered medical, legal, or financial advice. Please seek advice from your own personal medical, legal, or financial advisors, as each person’s situation is different. (c) Copyright 2024 CareManity, LLC, all rights reserved. CareManity is a trademark of CareManity, LLC.

#EldercareSuccess #NeuropathyCare #SeniorHealth #CaregiverSupport #AgingParents #ElderlyIndependence #NeuropathyAwareness #SeniorSafety #FamilyCaregiving #HealthyAging #ElderlyMobility #SeniorWellness #CaregiverTips #NeuropathyManagement #AgingInPlace #familycaregivers #seniorliving #healthandwellness #podcast #seniorcare #caregiving #agingparents #eldercare #adaptivettools #mobilityaids #fallsprevention 



This podcast uses the following third-party services for analysis:

Podtrac - https://analytics.podtrac.com/privacy-policy-gdrp
Transcript
Nancy May:

Hi there.

Nancy May:

I'm Nancy May, the host of Eldercare Success.

Nancy May:

before we get started, I wanted to share a comment from one of our listeners.

Nancy May:

Chrissy Smith.

Nancy May:

Chrissy says, I just wanted to let you know how I'm really enjoying your podcast.

Nancy May:

My in laws are at a stage where they need help and don't want it.

Nancy May:

My parents are pretty good about accepting help, but I know

Nancy May:

it's difficult for them too.

Nancy May:

Great show!.

Nancy May:

Thanks Chrissy and thank you so much for everybody else who's willing to share

Nancy May:

their comments and their thoughts or even make a suggestion or ask a question.

Nancy May:

That's what we're here for.

Nancy May:

Because as I always like to say, together we're stronger.

Nancy May:

Now, let's get on with the show.

Nancy May:

This show's about helping our parents gain a little bit more independence

Nancy May:

when they have that tingly feeling in their hands and feet, and may

Nancy May:

not even be able to feel them.

Nancy May:

It's called neuropathy.

Nancy May:

I had first hand experience watching my dad struggle with

Nancy May:

the impact of neuropathy.

Nancy May:

It was heartbreaking actually to see how his condition affected his ability to

Nancy May:

perform even some of the most basic tasks.

Nancy May:

Things like eating or writing me notes, where he always said in his letters to

Nancy May:

me, Oh, I hope you can read my handwriting because I can't feel my fingers.

Nancy May:

Or anytime I visited, he would say, I can't feel my fingers, but that's okay.

Nancy May:

I get along.

Nancy May:

I'm all right.

Nancy May:

And he did, but even still, walking sometimes became incredibly difficult

Nancy May:

because he couldn't feel his feet.

Nancy May:

I know that many of you listening here probably have similar challenges

Nancy May:

in taking care of your parents.

Nancy May:

They don't want to admit that there's a problem, and that's okay, but just

Nancy May:

knowing or being aware of it can make all the difference in their life and yours.

Nancy May:

I'm going to dive into a little bit more about what neuropathy is and how it can

Nancy May:

dramatically impact your parents life, their independence, and most importantly,

Nancy May:

some practical steps that you can take to make their lives just a little bit

Nancy May:

easier and give them some more dignity

Nancy May:

Whether it's specialized utensils.

Nancy May:

Or mobility aids or adaptive techniques.

Nancy May:

There are so many ways that we can use to support our parents to make their

Nancy May:

lives just a little bit easier when, Oh, my fingers are numb and I really can't

Nancy May:

feel that pencil when I'm writing to you, But I hope you can read my writing.

Nancy May:

Comes out.

Nancy May:

by the end of this episode, I hope you'll have a better understanding

Nancy May:

of neuropathy and have a little bit more power to take control or

Nancy May:

give control back to your parents.

Nancy May:

So what is neuropathy?

Nancy May:

It's actually kind of a catch all term that describes damage in the

Nancy May:

nerves, which can lead to a numbness, a tingling, or even a pain, especially in

Nancy May:

extremities like the hands and the feet.

Nancy May:

Neuropathy in the hands and feet, also known as peripheral neuropathy, say that

Nancy May:

one three times fast, can be caused by a variety of factors, including diabetes,

Nancy May:

Sometimes vitamin deficiencies, like vitamin D, which is pretty

Nancy May:

easy to happen to an aging parent.

Nancy May:

it can also be a result of an autoimmune disease like rheumatoid arthritis,

Nancy May:

lupus, Gillian Barr syndrome, and other things that actually attack the nerves.

Nancy May:

neuropathy can also happen as a result of infections,

Nancy May:

and even toxins that can build up in the body over time.

Nancy May:

Some medications can actually cause neuropathy as well,

Nancy May:

like chemotherapy drugs.

Nancy May:

then neuropathy can also happen as a result of injuries or trauma

Nancy May:

that have impacted the nerves over time, hereditary disorders.

Nancy May:

And even kidney and thyroid disease.

Nancy May:

For my dad, neuropathy was primarily in his hands and feet.

Nancy May:

Years earlier, he had had both hips replaced.

Nancy May:

In fact, he actually had one hip replaced a second time because it wore out.

Nancy May:

His doctor told him he exercised too much.

Nancy May:

Dad loved tennis.

Nancy May:

Dad also had arthritis in his hands, which is not uncommon

Nancy May:

for a lot of elderly people.

Nancy May:

And he would complain about the tingling or numbness or not being

Nancy May:

able to feel a pencil When he was trying to write me letters, even in

Nancy May:

making notes, I could see the videos that the aides would send me, and dad

Nancy May:

would be making lists for Christmas cards and gifts to give at holidays

Nancy May:

and other things that he wanted to do.

Nancy May:

He was a list maker for sure.

Nancy May:

And just getting the notes out for himself so that he could read them was difficult.

Nancy May:

Sometimes even eating properly at the table was difficult for him.

Nancy May:

Simple tasks like picking up a knife and a fork or holding a cup.

Nancy May:

Can you imagine what it's like to try and feed yourself when you can't

Nancy May:

feel the fork that you're holding or the cup that you're holding?

Nancy May:

You can see it, but you can't actually feel it.

Nancy May:

It's kind of weird for sure.

Nancy May:

It also makes life incredibly difficult just for daily activities, That loss

Nancy May:

of dexterity and the sensation not only made him overly dependent on others,

Nancy May:

although he tried not to be, but at a higher risk for falls and injuries.

Nancy May:

You see, when you can't feel your feet, you also tend to shuffle.

Nancy May:

So having proper fitting shoes is important.

Nancy May:

It's also important to understand that when neuropathy attacks the feet, you're

Nancy May:

not able to necessarily feel if there's a sore or a rub going on in a shoe that's

Nancy May:

ill fitted or just not comfortable.

Nancy May:

We always try to make sure that dad's shoes were the right size, he had big

Nancy May:

feet, and that the cushioning of the socks were good for him too and didn't bunch up.

Nancy May:

That's not easy for a caregiver like us to do because, you know what,

Nancy May:

socks bunch up even in my own shoes.

Nancy May:

And if you can't feel them, those wounds happen very

Nancy May:

quickly on frail, delicate skin.

Nancy May:

And yes, the skin on our feet becomes very frail and very think over time

Nancy May:

But those wounds can create bigger problems down the road.

Nancy May:

So pay attention to shoes and socks and how your dad and mom's feet

Nancy May:

actually fit into their shoes.

Nancy May:

Unfortunately, a lot of podiatrists will sell you these ugly, I call them

Nancy May:

Clawhoppers, the shoes that dad had gotten looked like Frankenstein shoes,

Nancy May:

and I think because the toes were so large, I understand because they wanted

Nancy May:

to make sure there wasn't any rubbing or the inside of the shoes, but they

Nancy May:

also looked like they were probably causing dad more problem than help.

Nancy May:

You see, these big boxy toes when you can't feel your feet

Nancy May:

are difficult to pick up.

Nancy May:

So understand that when looking for proper shoes and fitting When dealing with

Nancy May:

parents who have neuropathy in their feet,

Nancy May:

one of the biggest hazards for an elderly person who has neuropathy is

Nancy May:

the dangers of falls or accidents.

Nancy May:

You see, neuropathy can even make it difficult for somebody to

Nancy May:

even notice if they've been cut.

Nancy May:

Well, unless they look down and see there's blood everywhere on the floor.

Nancy May:

That's not such a good thing, because then you got to run and get a band aid,

Nancy May:

or a bandage, or God forbid, a tourniquet.

Nancy May:

Okay, I'm slightly over exaggerating, but you don't want to get there.

Nancy May:

when walking, it's also difficult for them to properly gauge the position of

Nancy May:

their feet and where they're placing them.

Nancy May:

So tripping on the edge of a carpet or even picking your feet up high enough

Nancy May:

To get over the edge of the garage door into the house can be difficult.

Nancy May:

One of the best things that I love for that problem is to make sure that

Nancy May:

you've got a ramp from your garage or your front door into the house.

Nancy May:

That makes it just a little easier in picking up feet so

Nancy May:

that they can clear the doorstep.

Nancy May:

Well, they don't even have to clear the doorstep because it's a smooth ride up the

Nancy May:

hill and a gentle one, hopefully, at best.

Nancy May:

Beyond safety concerns like walking or falling even because

Nancy May:

you can't feel your feet

Nancy May:

and yes, even feeling that you've got a cut and are bleeding

Nancy May:

like a pig all over the place.

Nancy May:

Maybe not like a pig, but in any case, beyond safety concerns,

Nancy May:

neuropathy can also make it extremely difficult for an older person to

Nancy May:

deal with basic daily activities.

Nancy May:

That sense of dignity and wanting to be able to dress yourself or bathe

Nancy May:

yourself can be difficult as well.

Nancy May:

for example, buttoning.

Nancy May:

Now, buttoning shirts or pants or zippers or anything like that, again,

Nancy May:

when you can't feel your hands, just getting a grip on something or knowing

Nancy May:

if your grip is tight enough isn't easy.

Nancy May:

one way to make that a little easier is to make sure that clothing

Nancy May:

doesn't have buttons or zippers.

Nancy May:

There are a lot of attractive clothes out there now for older people and younger

Nancy May:

people, where they're just pull ups.

Nancy May:

can you imagine dad in Lululemons?

Nancy May:

Lululemon, but I don't even know if they have them for guys.

Nancy May:

I guess I'll have to check that one out.

Nancy May:

Dad always loved his buttoned pajamas, but our aides made sure that his

Nancy May:

dignity was kept intact and helped him make sure that they were buttoned

Nancy May:

properly, or buttoned them up first and got them in up over his head.

Nancy May:

Losing that sense of autonomy and dignity is really devastating

Nancy May:

for many of our folks.

Nancy May:

And it's hard for us to watch too.

Nancy May:

As caregivers, we have to be proactive in finding ways to support our parents

Nancy May:

and to help them maintain their independence as long as possible.

Nancy May:

I know we all want to step in and say, Mom, Dad, maybe you need a little help.

Nancy May:

And they're reluctant to accept it.

Nancy May:

You've got to understand they've been taking care of us all their lives,

Nancy May:

even if we're well into our fifties.

Nancy May:

and thinking of us as the ones that care for them can be difficult.

Nancy May:

So a little gentleness goes a long way on both sides, but

Nancy May:

here are 10 ways to help your older folks with neuropathy issues so they

Nancy May:

can keep their dignity intact and you can keep your head and heart intact.

Nancy May:

first is to invest.

Nancy May:

And adaptive kitchen tools, things like turnkey jar openers.

Nancy May:

Or a rocker knife.

Nancy May:

Now, I actually don't recommend a rocker knife because all you need to

Nancy May:

do is get your finger underneath that if they don't have both hands on.

Nancy May:

And oops, dad's lost a finger.

Nancy May:

Not a good thing.

Nancy May:

However, there are these big grip handle utensils, forks and knives,

Nancy May:

that have a rubber grip to them.

Nancy May:

And they're great.

Nancy May:

They look a little clunky, and my dad was reluctant to use them at first.

Nancy May:

But, you know what?

Nancy May:

After he started to use them, he actually could feed himself, and not have to worry

Nancy May:

about the food falling off the fork.

Nancy May:

so that kept everybody happy, me included.

Nancy May:

There are also larger plastic cups that can be held with kind of

Nancy May:

like sippy cup handles on either side made specifically for adults.

Nancy May:

now the kid ones are kind of small And again, if you're dealing

Nancy May:

with arthritis, gripping a hand around a small item is not easy.

Nancy May:

So I recommend getting a hold of the bigger grippy handle ones for adults.

Nancy May:

number two is encouraging gentle exercise, which is going to help improve circulation

Nancy May:

and mobility in hands and feet.

Nancy May:

Now that doesn't have to be a lot.

Nancy May:

A small one pound weight, just moving the wrist up and down is a great one.

Nancy May:

Or even those squishy balls.

Nancy May:

They can be fun because they can be funny faces.

Nancy May:

I found one the other day that looked like a French bulldog.

Nancy May:

How cute is that?

Nancy May:

The third is to ensure that your parents have well fitted and

Nancy May:

supportive footwear to prevent falls.

Nancy May:

That includes making sure they're not too slippery and not too sticky.

Nancy May:

Sticky shoes can sometimes grip too hard to carpets and that becomes a problem.

Nancy May:

Number four is thinking about things in the shower, like grab bars, non slip

Nancy May:

mats, and other safety features that are going to make sure that they can

Nancy May:

actually get a good grip on something.

Nancy May:

Now, a couple of weeks ago, we talked about grip bars and the smooth, fancy

Nancy May:

ones that are very attractive and maybe designery like look lovely, but if

Nancy May:

they don't have some sort of texture where their hand isn't going to slide

Nancy May:

down, it's going to be more difficult for your parents to get a good hold on

Nancy May:

something like that and prevent a fall.

Nancy May:

So, make sure that the grip bars actually have some texture on them.

Nancy May:

Number five is some topical pain medication strategies that can actually

Nancy May:

soften or ease the nerve discomfort.

Nancy May:

You know, there are a couple of CBD creams that are apparently very good.

Nancy May:

I tried one once and I didn't think it did anything, but you

Nancy May:

never know, it might work for you.

Nancy May:

Number six is a cane, especially those ones that have the little

Nancy May:

fore grips at the end, a walker.

Nancy May:

Now walkers are important, because you want to make sure that they're

Nancy May:

designed to make sure that your parent is able to stand upright, vertical,

Nancy May:

because there are some that the Medicare organizations give away.

Nancy May:

And they actually tilt the body forward.

Nancy May:

So your center of gravity is well over the front of your knees or your hips.

Nancy May:

And that's dangerous too.

Nancy May:

I personally like the drive models.

Nancy May:

I find them to be sturdy and steady.

Nancy May:

Generally, most of the models are designed to make sure that your

Nancy May:

parents stay vertical, not at an angle that improves their stability

Nancy May:

and confidence in walking as well.

Nancy May:

Number seven is to make sure that their living space is well lit to

Nancy May:

reduce for any vision changes that might be going on, especially at night.

Nancy May:

Now, if they've got some support at night, you or an aide or somebody

Nancy May:

else, then making sure that they're around to help them get from the

Nancy May:

bathroom to the bed or wherever they might want to go is important.

Nancy May:

But even then, we need a little extra light at night sometimes too, to make

Nancy May:

sure that we can see where we're going.

Nancy May:

The last thing I'd want to do is trip over dad.

Nancy May:

Not a good thing, right?

Nancy May:

Number eight is Occupational Therapy.

Nancy May:

Sometimes it works, but you're going to need a recommendation or a prescription

Nancy May:

from a doctor to make sure that you can get PT or OT in the house.

Nancy May:

You don't need to take mom and dad to a physical therapy location to

Nancy May:

have them go through the grueling exercises that they might be placed

Nancy May:

through at a place like that.

Nancy May:

The comfort of your own home, or their own home, I think is

Nancy May:

always best, when possible.

Nancy May:

Number nine is to wear, I call them little stretchy gloves to make sure

Nancy May:

that they have a little bit more grip in opening things or doing other tasks.

Nancy May:

They may not always look pretty, but you know what, you can get them in

Nancy May:

some pretty wild colors and that can be fun too, especially when you've got

Nancy May:

a little bit more grip on the inside.

Nancy May:

They can be lightweight and comfortable.

Nancy May:

and if you're dealing with clothes for mom.

Nancy May:

Why not hot glue a little bling on them?

Nancy May:

They can be a fashion statement.

Nancy May:

Your fashion statement, maybe not Yves Saint Laurent.

Nancy May:

Had to say that.

Nancy May:

Number 10.

Nancy May:

Most importantly, please be patient and understand and focus

Nancy May:

on preserving your parents dignity.

Nancy May:

Their dignity is going to make your life better.

Nancy May:

And it's going to help your heart too.

Nancy May:

Neuropathy can dramatically impact an elderly parent's independence

Nancy May:

and quality of life and put them at higher risks of falls or accidents.

Nancy May:

Adaptive equipment, mobility aids, home safety modifications can go a

Nancy May:

long way in helping your mom or dad regain autonomy and independence.

Nancy May:

And then working closely with a medical professional using a

Nancy May:

compassionate and thoughtful approach are key to supporting our parents

Nancy May:

through this challenging condition.

Nancy May:

I love that my dad cared enough to write me notes, even if I couldn't

Nancy May:

read them or they were kind of cat scratched because of his neuropathy.

Nancy May:

I'm pretty sure he liked sending me notes as well.

Nancy May:

it didn't matter that they weren't long.

Nancy May:

The fact that he was taking the time to do so is all that mattered to me.

Nancy May:

And I'm pretty sure that mattered to him too.

Nancy May:

watching our folks struggle with any debilitating effect of

Nancy May:

neuropathy is pretty difficult.

Nancy May:

but as a caregiver, I hope that these tips make the quality of life for

Nancy May:

your mom and dad just a little bit better and the quality of life for

Nancy May:

you as their caregiver easier too.

Nancy May:

And before I go, speaking of falls and accidents, that can

Nancy May:

happen as a result of neuropathy.

Nancy May:

Yep, they can even slide off a chair, believe it or not.

Nancy May:

I heard that from a trauma surgeon, and he said, most of the

Nancy May:

accidents as a result of falls

Nancy May:

Happened when somebody's in a chair.

Nancy May:

Hard to believe, but it's true.

Nancy May:

So, maybe we get neuropathy in our butts.

Nancy May:

Oh, I better stop sitting here and recording this podcast.

Nancy May:

On that thought, please, to help your folks, should they have to call 9 1 1,

Nancy May:

don't forget to get the book, How to Survive 9 1 1 Medical Emergencies, a step

Nancy May:

by step guide before, during, and after.

Nancy May:

It's written specifically for you, the caregiver in mind, and

Nancy May:

more importantly, your folks.

Nancy May:

We deal with everything from what to do before you have an emergency all the way

Nancy May:

through to the end and getting out and discharged faster and making sure that

Nancy May:

your folks get home safely and soundly.

Nancy May:

And even what happens when the 911 system goes down.

Nancy May:

In fact, the 911 system went down in Texas just a couple of weeks ago.

Nancy May:

So yes, it does go down.

Nancy May:

And then if you like this show, please give it a five star rating.

Nancy May:

At least I hope you'll do that.

Nancy May:

You can get to any of your favorite listening platforms

Nancy May:

by going to EldercareSuccess.

Nancy May:

Live, and you can listen to our episode there on Apple, Spotify,

Nancy May:

or any other place you want to.

Nancy May:

But please remember, the show is EldercareSuccess.

Nancy May:

Live.

Nancy May:

Please share it with your friends, your family members, or even somebody

Nancy May:

that you see that might be standing online behind you at Starbucks or

Nancy May:

Dunkin Donuts or at the grocery store.

Nancy May:

And just looking a little stressed out.

Nancy May:

You know what?

Nancy May:

They could be a caregiver too.

Nancy May:

A note about this show can be your gift to them, because it's my gift to you.

Nancy May:

Take care, be well, and keep caring.

Nancy May:

Bye bye.

Show artwork for Eldercare Success

About the Podcast

Eldercare Success
Doing It Best with Eldercare Success
Join us in Doing it Best with Eldercare Success where we explore ways to relieve the stress, exhaustion and overwhelm that we all face in caring for an aging parent, frail spouse, or partner. Fear, frustration, emotional and financial strain do not have to be your MO! In this show, we dive into unraveling the tricks, traps, and gotchas that create more questions than answers while caring for those we love.
Join Nancy May, and her guests as she helps relieve the pressures and delivers solid ways to find more joy and freedom as we care for those with those we love. Here you’ll learn how to find the ground under your feet again. Hang tight there’s a better road ahead.
keeping our feet on solid ground. Hang tight there’s a better road ahead.

About your host

Profile picture for Nancy May

Nancy May

Nancy May is a corporate leader, business advisor, author, speaker, and nationally recognized podcast host. She has spent her career working with CEOs, Boards of Directors, and senior leaders in the public and private corporate sectors. These experiences gave her the strength and foundation to step in and provide her parents with guidance and support, both as their POA and Trustee, and diehard advocate as they aged. Nancy credits her father an entrepreneur, innovator of innovative eyewear design, and her mom for encouraging and preparing her to acquire the many skills needed to start, build, and lead several successful businesses. She has transitioned these competencies and life lessons to into her new business, CareManity, LLC, which focuses on providing family caregivers structured ways to obtain practical knowledge, resources, and access much-needed support.